Luna developed an infantile haemangioma in the first few days of life that grew rapidly; it involved her left eyelid and within 4 weeks her eyelid had completely closed, affecting her vision. If not treated promptly, the haemangioma would have caused permanent vision impairment.
She was treated with Propanolol for a year and the haemangioma regressed almost completely.
Her vision is now fine.
Archie presented with a sudden onset cyst in his right axilla. This was secondary to a congenital lymphatic malformation that had bled internally.
He underwent aspiration of the fluid and injection of a “sclerosing” drug that caused the cyst to shrink and scar down completely with excellent cosmetic results.
Charlie presented with a congenital large cystic lump of the left side of his face. This was secondary to a congenital lymphatic malformation.
He underwent aspiration the fluid and injection of a “sclerosing” drug on 2 different occasions that caused the cyst to shrink and scar down significantly with good cosmetic results.
Hunter presented with a congenital large cystic lump of the right side of his neck. This was secondary to a congenital lymphatic malformation.
While he was awaiting his treatment, he developed a severe bacterial infection that caused an obstruction of his airway. He needed to be intubated and he spent several days in intensive care.
He underwent aspiration of the fluid and injection of a “sclerosing” drug through 4 catheters while he was in intensive care – this caused the cyst to shrink and scar down significantly with good cosmetic results.
Ayla’s parents comments:
- “Our little girl developed this huge birthmark bump on her head just 3 weeks after birth (later known as hemangioma) and it kept growing bigger by day.”
- “My wife and I were really worried as it started ulcerating so we went to see Dr Maurizio Pacilli as part of the Vascular Anomaly MDT at Monash Children’s Hospital”.
- “The team was absolutely fantastic giving us reassurance and options for treatments. They really put our minds at ease”.
- “After a year of our daughter taking Propranolol, her hemangioma has substantially reduced to the point you can’t even notice it when her hair covers it (before this was not possible as the bump was so big it would poke out of the hair like a horn).”
- “She had no real side effects to speak of during the treatment and we feel very happy with how it turned out and can not thank the Vascular Anomaly MDT enough.”
